Online Sources to learn about Asperger’s Syndrome

Posted by Gina Rosenthal in community building | Leave a comment

Someone on Twitter asked me for links about Asperger’s Syndrome. I thought I would compile something quick.

  • The best resource I use is the Asperger’s Association of New England. They have resources for children, teenagers, college kids, and adults. They also have resources for people in an aspie’s life. If you are in New England, you should really consider joining. It’s pretty inexpensive.
  • I like reading Asperger Square Eight. It’s a blog by a woman with Asperger’s. I take what I read from her and see if my daughter sees things the same way.
  • I’m in a Facebook group called When Days When an Asperger’s Kid is not fun.  Our kids are amazing, and when you finally get to the place where you can see how they come at the world differently it changes everything. You can advocate for them, you can help them learn to advocate, you can communicate with them and it helps  with the family situation. But they are still kids, and they will make you crazy. On top of that, family and others won’t always understand why you have changed things to accommodate your child. That can drive you crazy too.
  • My daughter wasn’t diagnosed with Asperger’s Syndrome until the summer between her senior year and college. One resource I used while she was in school was the NonVerbal Learning Disorder site. The have articles on advocacy (or how to become a partner with school staff and still fight for your child’s rights, and definitions on the assessments used (there are general articles that help you understand the terminology).

Those are the resources that come to the top of my head. Maybe I should add intuition. You know what your child is capable of. Don’t let people discount that information.

Anyone have any other resources to add?

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